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Under Observation: The Interplay Between Ehealth and Surveillance

Edited by: Samantha Adams, Nadezhda Purtova, Ronald E. Leenes

ISBN13: 9783319483405
Published: January 2017
Publisher: Springer-Verlag
Country of Publication: Switzerland
Format: Hardback
Price: £119.99



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The essays in this book clarify the technical, legal, ethical, and social aspects of the interaction between eHealth technologies and surveillance practices. The book starts out by presenting a theoretical framework on eHealth and surveillance, followed by an introduction to the various ideas on eHealth and surveillance explored in the subsequent chapters. Issues addressed in the chapters include privacy and data protection, social acceptance of eHealth, cost-effective and innovative healthcare, as well as the privacy aspects of employee wellness programs using eHealth, the use of mobile health app data by insurance companies, advertising industry and law enforcement, and the ethics of Big Data use in healthcare. A closing chapter draws on the previous content to explore the notion that people are 'under observation', bringing together two hitherto unrelated streams of scholarship interested in observation: eHealth and surveillance studies. In short, the book represents a first essential step towards cross-fertilization and offers new insights into the legal, ethical and social significance of being 'under observation'.

Subjects:
Data Protection, Medical Law and Bioethics
Contents:
Chapter 1: Introduction (written by the editors)
Part I: Setting the stage
Chapter 2: Different notions of surveillance in healthcare
Samantha Adams
Chapter 3: The European legal framework for personal data in health
Nadezhda Purtova Part II: Personal health, privacy and autonomy: an uneasy relationship
Chapter 4: Unravelling Unobtrusiveness in mHealth Design and Use and implications for user's autonomy
Maartje Niezen
Chapter 5: eHealth and Privacy in U.S. Employer Wellness Programs
Anna Slomovic
Chapter 6: Sleeping information: describing circuits of knowledge in apps for self-management of sleep disorders
Federica Lucivero, Maartje Niezen and Samantha Adams Part III: Surveillance practices for risk management
Chapter 7: Profiling anomalies, anomalies of profiling: At the crossroads of risk assessments on Dutch youth and the European daChapter 1: Introduction (written by the editors)
Part I: Setting the stage
Chapter 2: Different notions of surveillance in healthcare
Samantha Adams
Chapter 3: The European legal framework for personal data in health
Nadezhda Purtova Part II: Personal health, privacy and autonomy: an uneasy relationship
Chapter 4: Unravelling Unobtrusiveness in mHealth Design and Use and implications for user's autonomy
Maartje Niezen
Chapter 5: eHealth and Privacy in U.S. Employer Wellness Programs
Anna Slomovic
Chapter 6: Sleeping information: describing circuits of knowledge in apps for self-management of sleep disorders
Federica Lucivero, Maartje Niezen and Samantha Adams Part III: Surveillance practices for risk management
Chapter 7: Profiling anomalies, anomalies of profiling: At the crossroads of risk assessments on Dutch youth and the European data protection regime
Karolina La Fors-Owcinik
Chapter 8: Selling passive monitoring to manage risk in independent living: Frontline workers in a bind
Clara Berridge
Chapter 9: Setting the Context: Use of CCTV inside Mental Health Wards in England
Suki Desai and Majid Yar
Chapter 10: Veillance and electronic medical records in disease management programs in the Netherlands
Bethany Hipple Walters Part IV: (Health) Data for public good
Chapter 11: Entitled to Privacy: economic perspective on use of health data
Ignacio Cofone
Chapter 12: Big Data, the e-health bubble and its fix
Winfried Tilanus
Chapter 13: Conclusions and reflections (written by editors).ta protection regime
Karolina La Fors-Owcinik
Chapter 8: Selling passive monitoring to manage risk in independent living: Frontline workers in a bind
Clara Berridge
Chapter 9: Setting the Context: Use of CCTV inside Mental Health Wards in England
Suki Desai and Majid Yar
Chapter 10: Veillance and electronic medical records in disease management programs in the Netherlands
Bethany Hipple Walters Part IV: (Health) Data for public good
Chapter 11: Entitled to Privacy: economic perspective on use of health data
Ignacio Cofone
Chapter 12: Big Data, the e-health bubble and its fix
Winfried Tilanus
Chapter 13: Conclusions and reflections (written by editors).