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Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Edited by: David G. Kirchhoffer, Bernadette J. Richards

ISBN13: 9781108491907
Published: October 2019
Publisher: Cambridge University Press
Country of Publication: UK
Format: Hardback
Price: £100.00
Paperback edition , ISBN13 9781108741309



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Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied.

This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

Subjects:
Medical Law and Bioethics
Contents:
Introduction. The limits of respect for autonomy David G. Kirchhoffer
Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society:
1. Autonomy and the law: widely used, poorly defined Bernadette J. Richards
2. Lack of autonomy: debates concerning research involving children Thomas H. Murray
3. Diminished autonomy: consent and chronic addiction Steve Matthews and Jeanette Kennett
4. Compromised autonomy: social inequality and issues of status and control S. Stewart Braun
Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy:
5. Self-ownership in research ethics Garrett Cullity
6. Beneficence in research ethics David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner
7. Dignity, being and becoming in research ethics David G. Kirchhoffer
8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice Justin Oakley
Part III. Beyond Autonomy: Turning to the Community to Protect the Individual:
9. Duties of shared membership in research ethics José Miola
10. Engaging communities in human research in the Global South Anita Ho
11. Reducing shared vulnerabilities to data misuse Wendy Rogers.

Series: Cambridge Bioethics and Law

Reimagining the Court of Protection: Access to Justice in Mental Capacity Law ISBN 9781108995030
Published June 2024
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£29.99
Consent for Medical Treatment of Trans Youth ISBN 9781009077958
Published June 2024
Cambridge University Press
£29.99
Embodied Narratives: Protecting Identity Interests through Ethical Governance of Bioinformation ISBN 9781108718196
Published November 2023
Cambridge University Press
£23.99
Mental Capacity, Dignity and the Power of International Human Rights ISBN 9781009304528
Published August 2023
Cambridge University Press
£95.00
Mental Capacity, Dignity and the Power of International Human Rights (eBook) ISBN 9781009304504
Published August 2023
Cambridge University Press
£95.00
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Consent for Medical Treatment of Trans Youth ISBN 9781316514207
Published October 2022
Cambridge University Press
£85.00
Consent for Medical Treatment of Trans Youth (eBook) ISBN 9781009085281
Published October 2022
Cambridge University Press
£29.99
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Reimagining the Court of Protection: Access to Justice in Mental Capacity Law ISBN 9781108834421
Published September 2022
Cambridge University Press
£85.00
Reimagining the Court of Protection: Access to Justice in Mental Capacity Law (eBook) ISBN 9781108999038
Published September 2022
Cambridge University Press
£29.99
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£85.00
£23.99
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Sharing Linked Data for Health Research: Toward Better Decision Making (eBook) ISBN 9781108619912
Published June 2022
Cambridge University Press
£85.00
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Sharing Linked Data for Health Research: Toward Better Decision Making ISBN 9781108426640
Published June 2022
Cambridge University Press
£85.00
International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence (eBook) ISBN 9781108808675
Published December 2021
Cambridge University Press
£100.00
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International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence ISBN 9781108489775
Published December 2021
Cambridge University Press
£100.00
£30.99
The Human Embryo In Vitro: Breaking the Legal Stalemate (eBook) ISBN 9781108945165
Published April 2021
Cambridge University Press
£100.00
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The Human Embryo In Vitro: Breaking the Legal Stalemate ISBN 9781108844109
Published April 2021
Cambridge University Press
£100.00
Self-Ownership, Property Rights, and the Human Body: A Legal and Philosophical Analysis ISBN 9781108797740
Published January 2020
Cambridge University Press
£36.99
Bioethics in Action ISBN 9781107543935
Published January 2020
Cambridge University Press
£30.99
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£100.00
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Euthanasia and Assisted Suicide: Lessons from Belgium ISBN 9781316648353
Published December 2018
Cambridge University Press
£36.99
Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy ISBN 9781316615706
Published December 2018
Cambridge University Press
£30.99
Solidarity and Justice in Health and Social Care ISBN 9781107637870
Published December 2018
Cambridge University Press
£30.99
Regulating Patient Safety: The End of Professional Dominance? ISBN 9781108464888
Published December 2018
Cambridge University Press
£30.99
Regulating Assisted Reproductive Technologies: New Horizons ISBN 9781107160569
Published November 2018
Cambridge University Press
£100.00
Regulating Assisted Reproductive Technologies: New Horizons (eBook) ISBN 9781108667777
Published November 2018
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£100.00
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Euthanasia, Ethics and Public Policy: An Arguement Against Legislation 2nd ed ISBN 9781107618336
Published October 2018
Cambridge University Press
£41.99
Empirical Bioethics: Practical and Theoretical Perspectives ISBN 9781107435506
Published June 2018
Cambridge University Press
£30.99
Solidarity in Biomedicine and Beyond ISBN 9781107424784
Published June 2018
Cambridge University Press
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The Global Health Crisis: Ethical Responsibilities ISBN 9781316640579
Published June 2018
Cambridge University Press
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£111.00
Euthanasia and Assisted Suicide: Lessons from Belgium (eBook) ISBN 9781108187671
Published September 2017
Cambridge University Press
£36.99
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Euthanasia and Assisted Suicide: Lessons from Belgium ISBN 9781107198869
Published September 2017
Cambridge University Press
£110.00
Solidarity and Justice in Health and Social Care (eBook) ISBN 9781108505857
Published September 2017
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£30.99
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Solidarity and Justice in Health and Social Care ISBN 9781107069800
Published September 2017
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£105.00
Property in the Body: Feminist Perspectives 2nd ed ISBN 9781316613740
Published June 2017
Cambridge University Press
£28.99
Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy ISBN 9781107164000
Published May 2017
Cambridge University Press
£100.00
Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy (eBook) ISBN 9781316732427
Published May 2017
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Merry and McCall Smith's Errors, Medicine and the Law 2nd ed ISBN 9781316632253
Published April 2017
Cambridge University Press
£40.99
Regulating Patient Safety: The End of Professional Dominance? (eBook) ISBN 9781108157919
Published March 2017
Cambridge University Press
£30.99
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Regulating Patient Safety: The End of Professional Dominance? ISBN 9780521190992
Published March 2017
Cambridge University Press
£62.00
The Global Health Crisis: Ethical Responsibilities ISBN 9781107190351
Published March 2017
Cambridge University Press
£100.00
The Global Health Crisis: Ethical Responsibilities (eBook) ISBN 9781108117746
Published March 2017
Cambridge University Press
£30.99
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Solidarity in Biomedicine and Beyond ISBN 9781107074248
Published January 2017
Cambridge University Press
£105.00
Solidarity in Biomedicine and Beyond (eBook) ISBN 9781108105606
Published January 2017
Cambridge University Press
£30.99
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Empirical Bioethics: Practical and Theoretical Perspectives ISBN 9781107078475
Published December 2016
Cambridge University Press
£110.00
Continuous Sedation at the End of Life: Ethical, Clinical and Legal Perspectives ISBN 9781316618639
Published December 2016
Cambridge University Press
£37.99
Electronic Health Records and Medical Big Data: Law and Policy ISBN 9781316617687
Published December 2016
Cambridge University Press
£28.99
Electronic Health Records and Medical Big Data: Law and Policy ISBN 9781107166547
Published December 2016
Cambridge University Press
£71.00
£100.00
The Affordable Care Act and Medicare in Comparative Context ISBN 9781107110557
Published August 2015
Cambridge University Press
£82.99
The Politics of Blood: Ethics, Innovation and the Regulation of Risk ISBN 9781107474796
Published November 2014
Cambridge University Press
£30.99
The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility 2nd ed ISBN 9781107429796
Published September 2014
Cambridge University Press
£34.99
The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility 2nd ed ISBN 9781107076075
Published September 2014
Cambridge University Press
£67.00
Human Cloning: Four Fallacies and Their Legal Consequences ISBN 9781107669598
Published March 2014
Cambridge University Press
£30.99
Privacy, Confidentiality, and Health Research ISBN 9781107696631
Published December 2013
Cambridge University Press
£30.99
Criminal Law, Philosophy and Public Health Practice ISBN 9781107022782
Published October 2013
Cambridge University Press
£100.00
Continuous Sedation at the End of Life: Ethical, Clinical and Legal Perspectives ISBN 9781107039216
Published August 2013
Cambridge University Press
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Bioethics, Medicine and the Criminal Law: Medicine, Crime and Society ISBN 9781107021532
Published January 2013
Cambridge University Press
£110.00
Human Cloning: Four Fallacies and Their Legal Consequences ISBN 9781107031852
Published December 2012
Cambridge University Press
£100.00