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Genetics, Disability, and the Law: Towards an EU Legal Framework


ISBN13: 9781107127579
Published: September 2017
Publisher: Cambridge University Press
Country of Publication: UK
Format: Hardback
Price: £99.99
Paperback edition , ISBN13 9781107566804



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While advances in science and technology bring many advantages, we must not ignore the harm that they can cause. Rapid changes in genetic testing are a prime example, and indicators can now help to detect, address and treat diseases.

However, in this new study, Aisling de Paor examines how genetic testing is also being used for non-medical reasons, for example for work opportunities and insurance coverage. Genetics, Disability and the Law is the first book of its kind to substantively consider an EU-level response to the use of genetic information. de Paor discusses how to help genetic and scientific research to evolve and grow, how to enhance public confidence in research, and how to control it so that it recognises our values and fundamental human rights.

An understudied but vitally important topic, de Paor's work provides a valuable and timely contribution to the field of disability rights.

Subjects:
Medical Law and Bioethics
Contents:
1. Introduction

Part I. New Science and Technology and the Ethical and Legal Issues Arising:
2. Background: advancing genetic science
3. Ethical implications, legal issues and public policy concerns of advancing genetic technology
4. A disability framework - the interface of the social model of disability with the evolution of genetic science

Part II. The Imperative for Regulation and the Choice of Regulator Theory and Frameworks:
5. Mode of regulation and choice of regulatory frameworks in legal theory
6. Framings from international human rights law
7. Evolving comparative law benchmarks

Part III. The European Perspective:
8. Human rights norms in the Council of Europe and the regulation of genetic information
9. The European Union and protection of genetic information

Part IV. Building the Case for A European Union Regulatory Framework:
10. National level approaches - a patchwork of protections
11. A case for European Union level action
12. Conclusion - where next for the EU?

Series: Cambridge Disability Law and Policy Series

The Disabled Contract: Severe Intellectual Disability, Justice and Morality ISBN 9781316606681
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Ableism at Work: Disablement and Hierarchies of Impairment ISBN 9781108739771
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The Disabled Contract: Severe Intellectual Disability, Justice and Morality
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The Disabled Contract: Severe Intellectual Disability, Justice and Morality (eBook)
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Ableism at Work: Disablement and Hierarchies of Impairment ISBN 9781108497305
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Ableism at Work: Disablement and Hierarchies of Impairment (eBook) ISBN 9781108750721
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The Right to Inclusive Education in International Human Rights Law ISBN 9781107121188
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Genetics, Disability, and the Law: Towards an EU Legal Framework ISBN 9781107566804
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Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled ISBN 9781107545069
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£36.99
Genetics, Disability, and the Law: Towards an EU Legal Framework (eBook) ISBN 9781108506298
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Disability and Community Living Policies ISBN 9781107140714
Published July 2017
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£105.00
Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled ISBN 9781107119000
Published April 2017
Cambridge University Press
£67.00
Discrimination, Copyright and Equality: Opening the e-Book for the Print Disabled (eBook) ISBN 9781108206525
Published April 2017
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Land Use Law and Disability: Planning and Zoning for Accessible Communities ISBN 9781316614143
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Disability and the Good Human Life ISBN 9781107545830
Published July 2015
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Disability and Information Technology: A Comparative Study in Media Regulation ISBN 9781107502895
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Family Policy and Disability ISBN 9781107049178
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People with Disabilities: Sidelined or Mainstreamed? ISBN 9781107502826
Published January 2015
Cambridge University Press
£30.99
Land Use Law and Disability: Planning and Zoning for Accessible Communities ISBN 9780521193931
Published December 2014
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£100.00
Social Inclusion of People with Disabilities: National and International Perspectives ISBN 9781107415294
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£33.99
Perfecting Pregnancy: Law, Disability, and the Future of Reproduction ISBN 9780521758390
Published January 2014
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Making Rights a Reality?: Disability Rights Activists and Legal Mobilization ISBN 9781107616400
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£30.99
People With Disabilities: Sidelined or Mainstreamed? ISBN 9781107000476
Published July 2013
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Bioethics and Disability: Toward a Disability-Conscious Bioethics ISBN 9781107610651
Published July 2013
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£36.99
Disability and Information Technology: A Comparative Study in Media Regulation ISBN 9780521191616
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Social Inclusion of People with Disabilities: National and International Perspectives ISBN 9781107014626
Published December 2012
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£100.00
Perfecting Pregnancy: Law, Disability, and the Future of Reproduction ISBN 9780521765206
Published June 2012
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£110.00
£82.00
Bioethics and Disability: Toward a Disability-Conscious Bioethics ISBN 9780521110303
Published June 2011
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Making Rights a Reality?: Disability Rights Activists and Legal Mobilization ISBN 9781107000872
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When is Separate Unequal?: A Disability Perspective ISBN 9780521713818
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