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Edited by: Mark Arnold KC, Simon Mortimore KC
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Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies

Edited by: Andrea Boggio, Cesare P.R. Romano, Jessica Almqvist

ISBN13: 9781108499873
Published: January 2020
Publisher: Cambridge University Press
Country of Publication: UK
Format: Hardback
Price: £151.00
Paperback edition , ISBN13 9781108718448



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The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

  • Serves as a reference manual for those interested in knowing how human germline genome editing is regulated
  • Proposes a new framework for the development of governance of human germline genome editing
  • Reframes the debate on germline engineering at a time when a regulatory framework is urgently needed

  • Subjects:
    Medical Law and Bioethics
    Contents:
    1. Introduction by Andrea Boggio,Cesare P. R. Romano and Jessica Almqvist
    2. The governance of human (germline) genome modification at the international and transnational level
    Part I. North America:
    3. The regulation of human germline genome modification in Canada by Erika Kleiderman
    4. The regulation of human germline genome modification in the United States by Kerry Lynn Macintosh
    5. The regulation of human germline genome modification in Mexico by María de Jesús Medina Arellano
    Part II. Europe:
    6. The regulation of human germline genome modification in Europe by Jessica Almqvist and Cesare P.R. Romano
    7. The regulation of human germline genome modification in the United Kingdom by James Lawford Davies
    8. The regulation of human germline genome modification in Germany by Timo Faltus
    9. The regulation of human germline genome modification in Belgium by Guido Pennings
    10. The regulation of human germline genome modification in Sweden by Santa Slokenberga and Heidi Carmen Howard
    11. The regulation of human germline genome modification in the Netherlands by Britta van Beers, Charlotte de Kluiver and Rick Maas
    12. The regulation of human germline genome modification in Italy by Ludovica Poli
    13. The regulation of human germline genome modification in Spain by Iñigo de Miguel Beriain and Carlos María Romeo Casabona
    14. The regulation of human germline genome modification in France by Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
    15. The regulation of human germline genome modification in Switzerland by Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
    Part III. Asia:
    16. The regulation of human germline genome modification in Japan by Tetsuya Ishii
    17. The regulation of human germline genome modification in The People's Republic of China by Lingqiao Song and Rosario Isasi
    18. The regulation of human germline genome modification in The Republic of Korea by Hannah Kim and Yann Joly
    19. The regulation of human germline genome modification in Singapore by Calvin W. L. Ho
    Part IV. Other OECD Countries:
    20. The regulation of human germline genome modification in Australia by Dianne Nicol
    21. The regulation of human germline genome modification in Israel by Vardit Ravitsky and Gali Ben-Or
    22. Towards a human rights framework for the regulation of human germline genome modification by Andrea Boggio, Cesare P. R. Romano and Jessica Almqvist.